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A 16 Year Old With A Rare Skin Disease Is Hopeful A New Treatment Will Make A Difference In His Life

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Jonathan Pitre isn't like most teenagers. The 16 year old Ottawa boy, known to those in his city as the 'Butterfly Boy', suffers from a rare form of the skin disease called Epidermolysis bullosa, which results in painful blisters that form all over his body, equivalent to third degree burns.Jonathan and his mom Tina Boileau are travelling to Minnesota to receive a blood and bone marrow transplant in hopes that it will improve his quality of life.  While the procedure comes with a high reward, the risk is also high. The procedure could be fatal.[ad type="aboveimagead1"]
[caption id="attachment_68350" align="alignnone" width="733"]butterfly boy Credit: Facebook / Tina Boileau[/caption]
Kelli Catana

Kelli Catana is a Canadian living in the US with a longstanding love affair with entertainment news and celebrity gossip. She has written about it for some of the most popular websites in both Canada and the US including Entertainment Tonight Canada, I'm Not Obsessed and Babble. When she's not chauffeuring her 4 kids back and forth to the rink for various hockey and figure skating activities, she can be found glued to Netflix or reading a great book.

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