When Erika Jones was pregnant with her second child, she was told by doctors that there was a good chance her baby wouldn’t be born alive. During her 30 week ultrasound a dark spot was spotted on the baby’s brain that was later confirmed to be a tumour.
In an interview with ABC News, Erika explains what she was told by doctors saying “The doctor prepared us that this was really bad. The prognosis was very poor.”
Three months earlier in the pregnancy Erika and her husband Stephen, who are also parents to 2 year old Audrey, were told that their unborn child would have Down Syndrome.
“After the initial mourning,” Jones said, “we made peace with it quickly and were so excited.”
Jones said the tumor “literally came out of nowhere. At the 26-week ultrasound, her brain looked completely fine.” At 30 weeks, the portion of her brain that was affected appeared “massive.”
“I don’t want to walk this path, I don’t want to sacrifice my daughter,’ I said. I imagined God just saying, ‘I’m so sorry and crying with us,’” she recalled. “We prepared ourselves for the worst and decided that she would have a meaningful life, no matter how short it might be.”
When their new daughter Abigail Noelle Jones was born, they brought in professional photographer Mary Huszcza of 8.08 Photography to take pictures of their gorgeous daughter.
The Jones’ were told that baby Abigail’s tumour was inoperable and that chemo would probably kill her, so they opted to bring their daughter home with them with pediatric hospice.
“If she dies, I don’t want it to be in plastic box in a hospital NICU. It will be home with us, surrounded by love and in our arms.”
As a mother my heart is breaking for this family, and I am so in awe of their strength! Hearing your child is sick and won’t get better has to be the most heartbreaking thing a parent can experience. Erika says that you’d never know Abigail was sick by looking at her as she’s had her feeding tube removed and she’s gaining weight.
“She is the chillest baby ever. She just loves to be held. She watches your face, tracks it with her eyes.”
Erika told ABC News that she knows that Abigail will be healed, even if it comes in death; “If He doesn’t heal her on earth, He will heal her the second she takes her last breath,” she said. “We know this is tragic, but Abigail’s life has a purpose.”
What an amazing family. These pictures of Abigail by 8.08 Photography are simply stunning too. Scroll down to see more pictures of Abigail with her family.