I know I’ve said this before, but I’ll say it again: I have a strong love/hate relationship with the Internet. I love it because of simple reasons like online shopping, Amazon Prime and gossip blogs but I also hate it for reasons like the one below.
According to blogger AliceAnn Meyer, someone, somewhere used her beautiful son’s photo and created a meme comparing him to a pug. Little Jameson actually has Pfeiffer syndrome, a craniofacial syndrome that causes premature fusion of the skull. He has had two cranial vaults and four sets of tubes placed in his ears.
“Pfeiffer syndrome is a craniofacial syndrome that includes craniosynostosis (premature fusion of the skull). The best way I can explain it is that there was a genetic mutation on the gene that tells your tissues and bones when to start and stop growing. Some grew too much (fused skull sutures), and some not enough (mid-face hypoplasia).
As a result, Pfeiffer’s kids vary from one to the other. Because of the severity of the mid-face hypoplasia and cranial abnormalities some kids have more issues breathing, eating, seeing, and hearing than others. Some kids have just 2 cranial sutures fused, others have all of them fused. It all depends on the child. All of this determines what kind, and how many surgeries will be needed.”
Now, AliceAnn is fighting back with a post on her blog entitled, “This Is My Son Jameson, And No, You May Not Use His Photo.” Here’s what she writes:
Now that sweet picture has resurfaced and is circulating around the internet. Except, that the photo has been altered. Someone, somewhere, decided for who knows what reason, to take that picture and create a meme comparing my son to a pug. What compels a person to do such a thing I will never understand. There is no way for me to know who did this, but for every post and share of this meme I will do everything in my power to get it taken down.
Exactly one week ago I spent my Saturday night fighting an individual to remove my son’s photo from his Facebook page, where it had been liked 5,000 times and shared nearly 3,000. It was no easy feat and took 100’s, maybe even 1,000’s of reports being submitted, an army of people fighting with me, and a good 24 hours before Facebook removed it from his page. Success!! Only to find it on another site, with 1,000’s more shares and likes. My heart literally sank. But, we fought on.
Happy 3rd Birthday Jameson
Today is Jameson’s third birthday, and I cannot believe how fast time passes! I also can’t believe that it hasn’t even been a year since his last surgery, it feels like forever ago. It is truly amazing the ability children have to bounce back and move on. I know that Jameson’s journey will shape the man he will become, but I love watching him embrace the fact that at heart he is simply a three year old little boy who loves life, his family, and his dog
I know I’ve said this before, but I’ll say it again: I have a strong love/hate relationship with the Internet. I love it because of simple reasons like online shopping, Amazon Prime and gossip blogs but I also hate it for reasons like the one below. According to blogger AliceAnn Meyer, someone, somewhere used her […]